Monday, August 23, 2010

Another day in the NICU; other ways to pray

Emma is as adorable as ever today... but there is a little less of her to love. She is down to 4 lbs 13.1 oz, and the doctor doesn't like it.  So we are back on feeding every 3 hours, with nursing every-other time, and feeding breast milk through the GI tube every other time.  She is expending so many calories nursing right now that she can't gain weight that way, so we will alter.  Please pray for good rest and feeding and growing for our Joy!

Jaundice is also threatening again, so please pray that it will not become an issue again.

More pictures are below.  While exhaustion still reigns, none of us are crying as much as we were.  We sure appreciate your prayers!

3 comments:

Dana in Georgia said...

Truly she looks adorable!

and obviously a fighter,
as she is beating the odds.

Praying in GA ~

Dawn S. said...

Just getting caught up on all your news, Chris. Emma and her family remain in our prayers as she braves a brand new world.

Emma reminds us of our firstborn, Miriam, who spent her first week in the Neonatal Intensive Care Unit at the University of Minnesota. She was full term but had breathing issues. We had IVs, CO2 monitors, and trach tubes to learn about. The nursing staff did so much to help us understand what was happening, and to show us how to do things for Miriam even though we couldn't hold her or care for her as we had pictured ourselves doing. We were deer in headlights and they cared for us as much as they cared for Miriam.

What I remember most is that when Miriam turned the corner, she was well in such a short time. They told me on Friday that they thought she'd be released on Sunday. I thought, "That can't be. You only took out her tubes two days ago." Sure enough, she was home on Sunday.

That was nearly 25 years ago. Today, she started her second year of law school. She is back living with us after five years in Chicago much to our delight! It really is fun!

I just want to let you know that reading about Emma brings all these memories back. It was a difficult time, so painful to watch her struggle for breath, to cry silently to be cuddled and be helpless to fix it for her. I don't know how or if this marked her, but it certainly marked Hassan and me. It deepened us and opened us. Profound joy where there was profound profound pain.

The peace of the Lord be with you always.

Dawn

Adria said...

Aunt Chris and Nicki,
I have been reading your posts and praying. I have been there and know how difficult and exhausting it is. Nicki, please be encouraged, both that Emma will be fine, she will be able to come home soon, and you will be able to successfully breastfeed. It is soooo much easier (mainly because it is calmer and less stressfull) at home. I remember the tears of empty arms, stress, and exhaustion. Please know that I am praying for your and your beautiful little girl.
Adria