birdshot chorioretinopathy. next month we will repeat the fluoriscein angiogram to check on the leaking blood vessels. If they have stopped leaking, we are good to continue on my present dose for 1-2 years. If they are still leaking, we will either up the dosage of cellcept or add in another drug component. I very much appreciate your prayers, Gentle reader! God is being good to answer them positively for me.
The eye doc remains skeptical of my sarcoidosis diagnosis. She is now suggesting I look into the possibility of paraneoplastic syndrome, which I will follow-up on with my oncologist. She is wondering whether that might explain my previous lymph node problem and my night-time oxygen problem. Whether we know what to call all of this or not begins to grow less important to me than living my life as God would have me with and in spite of these things. Whatever it is, the fatigue I feel must be dealt with as best I can, my eyes must be managed, and I want to spend my days serving God in a meaningful way. So we trudge ahead.
Like the Kaibab squirrel above, who watched us as we hiked through the mountains recently, I am trying to sit still and watch. I am waiting to see what God is doing. 2012 has been such a year of struggle physically, and then emotionally and spiritually, that I must refocus as I enter 2013. I wait on the Lord, and His plan for my new year. What will it be, I wonder?
6 months ago