Sunday, June 08, 2014
Two weeks, two weddings, two picnic quilts
These sweet, smart, talented girls love the Lord, and their new husbands. I am so very proud of them and happy to call them family!
I made picnic quilts for each couple, and thought I would share. For Rachel and Jordan, I made "All Star Picnic" (about 42 x 50 inches, and backed with the multi-color stripe.)
For Myka and Jeremy, I made "Parisian Picnic", (about 60 x 60, made with French reproduction fabrics, and backed with the striped fabric).
I enjoyed praying for and thinking of each girl while these were made, and pray they will be used for fun occasions for years to come.
Thursday, June 05, 2014
Throwback Thursday: Speech and Debate
I have so enjoyed other people posting throw-back Thursady or Flashback Friday that I thought I would give it a go. Here is a photo from somewhere around 2000 or 2001, loading a car of speech and debate kids, their luggage and bins, coming home from a tournament. Here's to those amazing and fun days with Josh Baer, Emily and Carolyn Thomson, Joey Piotrowicz, Josh Spill, Michael Francisco, et al. And here's to thinking of the current crews-- Hallie Brown, Drew Hollis, et al., heading to current Nationals tournaments.
Wednesday, June 04, 2014
Saturday, May 31, 2014
Strange paths
I am often surprised by the strange twists my path in this world takes. But there is a pleasing unity to the whole when I look back at it. That helps me to look forward with hope.
Friday found me at the medical center being diagnosed with acute diverticulitis and an abcess on my bowel. We have hopefully found these in time to successfully treat them with antibiotics at home.
As I look back, I realize the tender care of a loving heavenly Father who was willing to disappoint me (today I am missing a sweet niece's wedding and reunion with family) in order to keep me off the road and with good medical care as this has unfolded. God is good.
And as I look forward to things planned and hoped that may not now be able to happen, I am working at being content in His love and care, and leaving the details to Him. May we both be successful at such rest, Gentle Reader.
Thursday, May 29, 2014
Stuck between
I suppose it is part of the human condition to feel stuck between things. That seems to be a recent theme of my life: with a myriad of brilliant and wonderful doctor-specialists, I sometimes feel picked to pieces, each doc wanting to deal with his or her own part, but not with me as a whole. I feel torn between my beloved family members all over the country, wanting to be with them, but being far from some and close to others. But it never seems to be right.
That is, of course, because of my biggest in-between. I am in this fallen world and don't belong here, and not yet in nor fit for my home in heaven. There is an old song by Glad that says it well:
The depth of your dreams, the height of your wishesThe length of your visions I seeThe hope of your heart is much bigger than thisFor it's made out of what might beSo now picture your hope, your heart's desireAs a castle that you must keepAnd all of its spelndor, it's drafty with lonelyThis heart is too hard to heatwhen I get lonely, now that's only my signThat some room is empty in me, and that room is there by designIf I feel hollow, well that's just my proof that there's moreI need to followAnd that's what the lonely is forThat's what the lonely is forBut you could seal up the painBuild walls in the hallways, close off a small room to live inBut then those walls would remainAnd keep you there alwaysYou would never know why you were given,Why you were given that lonelyWhy you were given that empty in your heartWhy you were given that hollowThat's just your proof that there's more you need to followThat's what the lonely is forFeels like a curse, not a blessingThis palace of promiseWhen the empty chill makes you weepWith only the thin fire of romance to warm youThese halls are too tall and deepWhen I get lonely, well that's only my signSome room is empty in me and that room is there by designIf I feel hollow, well that's just my proof that there's moreFor me to followAnd that's what the lonely is forFor me to follow, that's what the lonely is for
So, on this crushed-between-the-layers kind of day, Gentle Reader, I am clinging to the God who designed me and trusting He knows what he is doing in my life, and in yours.
“I am not what I ought to be, I am not what I want to be, I am not what I hope to be in another world; but still I am not what I once used to be, and by the grace of God I am what I am”
― John Newton
Wednesday, May 21, 2014
Saturday, May 17, 2014
Good news
- My birdshot auto-immune eye disease is at a stable point. While we still have little vestiges of leakage from my blood vessels, it is difficult at this point to tell what is due to permanent damage, and what is not really leakage at all. It is possible these 'shadows" will continue to improve as we continue treatment, or they may be with me forever. But basically there is nothing active going on in either eye: no active lesions, to active leakage. Words fail me to describe the difference between the original FA imaging done in October of 2012 and the last one. What was chaotic and blurry and misshapen blood vessels has become very clearly defined, normal-looking blood vessels. It is amazing!
- My sight has returned to 20/20 in my left eye, and 20/25 in my right eye- (with my glasses, of course!) and that is a huge improvement. As a matter of fact over the last 2-3 weeks, i have noticed a substantial improvement in acuity. Praise God! And just going through the tests was much less painful.
- My sed rate and inflamation markers have continued to drop as of my last blood work, and I hope to see more in next week's blood work! I am regaining energy and feeling much better than I have in a very long time. Additionally, my night vision has improved, my contrast vision has improved, and my cataract has become less bothersome.
- Now that I am at this "remission" point, we may still have to tinker with my medicine dosages and intervals, but basically I will stay at something like this every-day cellcept and every 8-week remicade infusion schedule for about 2 years. If everything is still stable at that point, we will try to wean me off of my drugs and see if I can maintain the remission without them. I recently read that about 20-25% of birdshot patients who reach remission stay there, while about 75% have one or more future flare-up. periods of remission can last anywhere from weeks to years. And some birdshot patients never reach remission. So I am blessed.






