Wednesday without words

Good news

Yesterday we headed to Albuquerque for my eye exam, prior to next week's infusion.  We got some very good news!  Every test showed improvement, and we have started the "remission" clock ticking.  What does that mean?

• My birdshot auto-immune eye disease is at a stable point.  While we still have little vestiges of leakage from my blood vessels, it is difficult at this point to tell what is due to permanent damage, and what is not really leakage at all.   It is possible these 'shadows" will continue to improve as we continue treatment, or they may be with me forever.  But basically there is nothing active going on in either eye: no active lesions, to active leakage. Words fail me to describe the difference between the original FA imaging done in October of 2012 and the last one.  What was chaotic and blurry and misshapen blood vessels has become very clearly defined, normal-looking blood vessels. It is amazing! 
• My sight has returned to 20/20 in my left eye, and 20/25 in my right eye- (with my glasses, of course!) and that is a huge improvement.  As a matter of fact over the last 2-3 weeks, i have noticed a substantial improvement in acuity.  Praise God! And just going through the tests was much less painful.
• My sed rate and inflamation markers have continued to drop as of my last blood work, and I hope to  see more in next week's blood work!  I am regaining energy and feeling much better than I have in a very long time. Additionally, my night vision has improved, my contrast vision has improved, and my cataract has become less bothersome.
• Now that I am at this "remission" point, we may still have to tinker with my medicine dosages and intervals, but basically I will stay at something like this every-day cellcept and every 8-week remicade infusion schedule for about 2 years.  If everything is still stable at that point, we will try to wean me off of my drugs and see if I can maintain the remission without them.  I recently read that about 20-25% of birdshot patients who reach remission stay there, while about 75% have one or more future flare-up. periods of remission can last anywhere from weeks to years.  And some birdshot patients never reach remission. So I am blessed. 

I am very grateful for a good doctor, a great husband with both loving support and good insurance, and an amazing God who lifts me up just when I need it the most.  Thanks, Gentle Readers, for your continued prayers and support.  

Wednesday without words

These photos from a hike on 5-10-14 with the parental units in Las Conchas Canyon, Jemez Mountains, New Mexico-- about 30 minutes from my house.

God's process

Two days ago it was spring and blooming things were starting to look lush and promising.  Today it is snowing.  If there is one truth about the climate that everyone can agree upon, it is that it changes in unpredictable ways.

I am also in a season of walking with friends as they lose their parents.  That is partly due to my own age rising to the mid-fifties.  And as it does, my body changes in ways I don;t appreciate.  Most of us don't like these changes.  The one constant, perhaps, in this veil of tears, is change.

And then I read this yesterday:

 "...[H]e calls us to a life of constant work, constant growth, and constant confession and repentance. Making us holy is God's unwavering agenda until we are taken home to be with him. He will do whatever he needs to produce holiness in us. He wants us to be a community of joy, but he is willing to compromise our temporal happiness in order to increase our Christlikeness. Any time we find ourselves in difficulty or trial, it is easy to think we have been forgotten or rejected by God. This is because we do not understand the present process. God is not working for our comfort and ease; He is working on our growth. At the very moment we are tempted to question his faithfulness, he is fulfilling his redemptive promises to us. After all, it's not like there are only some people who really need to change. Change is for everyone, and God is always at work to complete this process in us."

~How People Change by Timothy Lane and Paul David Tripp, pp. 6-7

Indeed.  It struck me to the heart.  When I rail against change, I am railing against and failing to understand the important process God is working in me or others.  There is a whole theology of suffering in this one paragraph.

So today I am trying to rejoice, but hold joy lightly; trust in God's process when I don't see it or understand it.  I hope you will come along with me, Gentle Reader, and watch what God will do.

Spring projects

I completed a couple of sampler quilts this spring, and since they have now been gifted, I can share.

"Lavender Sampler" was made for my sweet niece, Hallie, on the occasion of her high school graduation.  Well done, Hallie Jane!  I enjoyed both piecing and quilting this one.

And several months ago, my mother-in-law, Marilyn, gave me blocks she had completed around 10 years ago, deciding she would never use to complete a quilt.  She thought maybe I could use them. So I put the blocks together and made a nice throw-quilt for her and gave it to her for Mother's Day.  She did a good job with her blocks, don't you think?

I have also completed a couple of picnic quilts for up-coming weddings-- look for pictures after the events.  And now I am working on a baby quilt for Baby Carys, grandchild #4, due in June. I have had a productive spring!

As I make these quilts, I pray for the people I am making them for.  And though I am often far away, I treasure the idea of them wrapping up in these quilts and me being a little part of their lives in that way. What  a privilege to live a life that allows me to be creative and have the leisure to sew away.  I am grateful to God and to my sweet husband who funds these sewing adventures!

Some of my favorite moms

Today I am praising God for his provision of mothers.  He hard-wired them to be selfless, loving, and tender-hearted. And I am grateful, especially for these moms today:

 My mom and Dave's mom: so grateful for their examples of love and service over the long haul!

Elsa: mother to our Ada, calm, steady, caring, smart, funny.

Nikki: mother to our Emma and Ezra, creative, caring, full of life, thoughtful.

I am extremely grateful for these wonderful mothers in my life!

Wednesday without words